Supporting Secure Data-Sharing Partnerships

Overview

A rapid rise in malicious cyber activity and several well-publicized incidents at academic centers led UCSF leadership to determine that a thorough review of our data management and data sharing practices was necessary to ensure the appropriate protection of our data assets.

At the Chancellor’s request, a task force of research, technology, and operational leaders across the University reviewed how we share data with external partners and created a set of recommendations.

What to Expect

New contracts that propose data sharing with external entities are being closely reviewed by UCSF's five authorized contracting units. Data sharing agreements that meet any of the criteria below will be escalated by the contracting unit to the IT Governance Committee on Enterprise Information and Analytics (EIA) for evaluation.

This multi-phase project will unfold over several months. End-to-end value stream mapping of the external partnership process began in June 2019.

Escalation criteria

  • Sharing any UC protected health information (PHI) outside of IRB-approved clinical trials.
  • Sharing sensitive UCSF data (i.e. P3 and P4) with high-risk countries or companies
    • Identified using Restricted Party Screening software from Visual Compliance® and information from government and law enforcement authorities (e.g. F.B.I.)*
  • Sharing de-identified sensitive data (i.e. P3 and P4) with:
    • Any commercial entity (domestic or international); or,
    • Any colleges and institutes of higher learning outside of the U.S.

*The Visual Compliance Restricted Party Screening software is available to all UC employees. You may consider signing up if you are considering entering into a data sharing partnership.

Task Force Recommendations

Based on its findings, the task force has created a set of interim and longer-term recommendations across contracting, technology, security, and data access areas that will help inform process change going forward.

Questions and Feedback

We want to hear from you and welcome your questions.

FAQ

Review frequently asked questions about the data sharing project. If you have a question that is not addressed, please email [email protected].

Task Force

Name Content Area Title
Julia Adler-Milstein, PhD Data Policy Director, Center for Clinical Informatics and Improvement Research
Joe Bengfort UCSF Information Technology Associate Vice Chancellor and Chief Information Officer
Kirsten Bibbins-Domingo, PhD, MD, MAS Population Health Vice Dean for Population Health and Health Equity
Christy Boscardin, PhD Education Research Associate Professor, Department of Medicine
Michael Blum, MD (Task Force Chair) Data Governance Associate Vice Chancellor for Informatics, Chief Digital Transformation Officer
Katja Brueckner, PhD Basic Science Research Professor, Department of Cell and Tissue Biology, School of Dentistry
Atul Butte, MD, PhD Institute for Computational Health Sciences Director of the Institute for Computational Health Sciences and Executive Diretor for Clinical Informatics across the six UC Schools of Medicine and Medical Centers
Lisa Cisneros Communications Strategic Communications & University Relations
Lindsey Criswell, MD, MPH Research Vice Chancellor, Research
Russ Cucina, MD Clinical Informatics Vice President, Health Informatics and Chief Health Information Officer
David Dobbs Enterprise Information Executive Director, Data Warehousing and Analytics
Elizabeth Engel UCOP Chief Strategy Office
Jenny Grandis, MD Clinical and Translational Science Institute Associate Vice Chancellor, Clinical and Translational Research
Patrick Phelan Information Technology Security Chief Information Security Officer
Tom Poon, CHPC Privacy Office Interim Chief Privacy Officer
Greta Schnetzler Legal Chief Campus Counsel
Niraj Sehgal, MD Clinical Quality Professor, Department of Medicine
Barry Selick, PhD Strategic Partnerships Vice Chancellor, Business Development, Innovation and Partnerships
Brian Smith Compliance Associate Vice Chancellor for Research Infrastructure and Operations
Miriam Rike Finance VP Cancer Finance Services on behalf of Barrie Strickland, CFO UCSF Health
Ralph Gonzales Research Chief Innovation Officer
David Teitel, MD Academic Senate Chair, Academic Senate