Clinical Data Colloquium
For Researchers

Wednesday, May 10th
Mission Bay Conference Center

Join us for an informative half day event on the ins and outs of accessing, using and storing the clinical data available for research at UCSF. Attendees can expect to gain a broad understanding of the clinical data resources available at UCSF, how they fit together and the appropriate uses of each resource. Guidance on access and approval processes will also be shared, as well as an explanation of the skills required to use each resource. This is a must-attend colloquium for anyone whose research requires clinical data!

Wednesday, May 10, 2017
9am-12:30pm
Mission Bay Conference Center, Robertson Auditorium
1675 Owens Street, Mission Bay Campus

New!  Answers to questions submitted during Colloquium

AGENDA

9:00am Welcome
Sam Hawgood, MBBS, Chancellor and Arthur and Toni Rembe Rock Distinguished Professor

9:10am Opening Remarks
Atul Butte, MD, PhD, Director, UCSF Institute for Computational Health Sciences
Presentation

9:20am Overview of UCSF Clinical Data Available for Research
Leslie Yuan, MPH, Chief Information Officer, Clinical & Translational Science Institute
Presentation   |   Handout: Five Common Scenarios
Rick Larsen, Director, Academic Research Systems
Presentation

9:35am Data Sources

  1. Identified data
    Dana Ludwig, MD, Research Database Architect
    Presentation
  2. De-identified data
    Dana Ludwig, MD, Research Database Architect
    Presentation
    Jennifer Creasman, MSPH Director, Consultation Services, Data Management Unit
    Presentation
  3. Case study
    Alvin Rajkomar, MD, Senior Research Scientist at Google Brain and Hospitalist at UCSF
    Presentation
  4. Multi-institution
    Mary Whooley, MD, Professor of Medicine, Epidemiology & Biostatistics
    Presentation
    Atul Butte, MD, PhD, Director, UCSF Institute for Computational Health Sciences
    Presentation
  5. Additional data resources coming soon
    Atul Butte, MD, PhD, Director, UCSF Institute for Computational Health Sciences
    Presentation (pages 9-15)
    Dana Ludwig, MD, Research Database Architect
    Presentation
    Michael Blum, MD, Director, Center for Digital Health Innovation /
    Rachael Callcut, MD, MSPH, Associate Professor of Surgery
    Presentation

11:25am Research Computing Capabilities

  1. Sharing, storing and analyzing data sets
  2. De-identification and natural language processing

 Sharat Israni, PhD, Executive Director, Institute for Computational Health Sciences
Presentation   |   Handout

11:35am Access Process

  1. For self-service tools
  2. For actual data
  3. Regulatory, compliance and contracting

 Leslie Yuan, MPH, Chief Information Officer, Clinical & Translational Science Institute
Presentation   |   Handout

11:50am How to Get Help
Ariel Deardorff, Data Services Librarian
Presentation   |   Handout

12:00pm Feedback and Q&A Session on Data Sources
Rick Larsen, Director, Academic Research Systems

12:20pm Closing Remarks
Mark Pletcher, MD, MPH, Director, Informatics and Research Innovation, UCSF Clinical & Translational Science Institute

12:30pm Post-Event Breakout Session: EHR Sandbox - Fisher Banquet Room East
The Center for Digital Health Innovation (CDHI) team is planning an EHR "sandbox" environment that our faculty, staff, and students could use to test and demonstrate external software applications that exchange data in real-time with the EHR. This sandbox will utilize technologies such as SMART, FHIR, OAuth, and Web Services to enable data exchange with our EHR. CDHI will use this breakout session to learn more about what users would like to see in the EHR sandbox and how they might utilize such a tool.
**Registration for the breakout session has reached capacity.**