Data Management

Department of Epidemiology & Biostatistics provides data collection, cleaning, and storage services to research investigators.

• Cloud computing and server/desktop virtualization, hosted within the UCSF network and compliant with NIST-mandated security protocols
• Customized programming and data services
• Customized databases for outcome ascertainment studies

An online application that helps researchers create data management plans.

• Meets funder requirements
• Quick-start guide
• General data management guidance

For online, mobile, and hybrid research studies, use Eureka, the cloud-based, HIPAA compliant research platform, created at UCSF and approved by UCSF IT Security. Key features include: 

• Mobile and web app study experience for fully remote or hybrid data collection
• Rapid remote recruitment from 400,000+ already-engaged participants or your own new participants
• Electronic / remote consent process, questionnaires, and other patient-generated data
• Wearable and mobile device data collection
• EHR integration via FHIR
• Coordinator data entry (eg: eCRFs)
• Flexible automated reminders for optimized engagement and follow-up
• Study management portal with raw data and customizable reports on demand with flexible access permissions

Clinical data at scale and very high performance, and an environment suited to pattern recognition and machine learning. This high performance compute cluster on AWS offers:

• Access to de-identified structured EHR data; additional data sets coming soon, including de-identified clinical notes and images
• Spark analytics engine, that enables fast data query via Spark-SQL, Machine Learning via Spark MLib, R via SparkR
• Query data using PatientExploreR  

Workshops, programs and expertise/office hours in:

• Finding, Managing & Sharing Data
• Statistics, Bioinformatics and Genomics
• Programming in R, Python and more
• Data Visualization with Tableau

UCSF's NLP community curates knowledge as participants experiment, learn and implement NLP tools in clinical and biomedical research projects.

• Slack channel and regular meetups
• Recommended tools for textual analysis of clinical notes

Web-based HIPAA-compliant and secure electronic data capture and storage for research studies.

• Develop data entry forms and surveys
• Data validation
• Database reports

Combines scientific expertise with broad experience in managing multi-center studies, and offers access to a network of high quality, experienced clinical centers.

• Study design, coordination and implementation
• Measurement selection
• Protocol development
• Database design
• Research study data collection via fax
• Data quality control