Data Sharing

UCSF has a 20% sample of Centers for Medicare and Medicaid Services Restricted Identifiable Files (RIF) available to UCSF investigators for re-use. These data are hosted on UCSF RAE secure servers and can only be accessed after completing a reuse application with CMS. Contact SOM Tech for help filing a reuse application. 

Self-service online public data repository that allows researchers to:

• Publish and share research data using any file format
• Get a permanent DOI for their data
• Search for and download public research data sets
• Meet funder and publisher requirements for data sharing

If you are working with an external / non-UCSF partner and you want to share data from the electronic health record (EHR), you will need an appropriate data sharing contract that is executed with your non-UCSF partner. You may also need a security review if data will be transferred. 

• Talk with a consultant who is knowledgeable about the latest UCSF data sharing requirements 
• Work with the UCSF Division of Industry Contracts for the data sharing contract (contact: [email protected]) 
• UCSF de-identified EHR data are considered UCSF Intellectual Property and are subject to HIPAA regulations. Read more on data de-identification.
• Read more on how UCSF supports secure data-sharing partnerships

Workshops, programs and expertise/office hours in:

• Finding, Managing & Sharing Data
• Statistics, Bioinformatics and Genomics
• Programming in R, Python and more
• Data Visualization with Tableau

Global clinical research data sharing and analytics platform.

• Comply with ICMJE guidelines about data sharing plans
• Discover and reuse clinical research data
• Secure research environment with analytics tools